Brayden and more

I am sorry. I know I am the worst blogger in the whole world. Not to mention, the worst at keeping you all updated on our little one. But I have good news!! Brayden has had hearing tests again, and he passed with flying colors!!!  Woo hoo!! Sooooo happy about that. now we are trying to wait patiently for them to re-do vision testing.  From the photos I have seen of him playing with toys at the hospital, he sure looks like he CAN see what he's grabbing for. However his left eye is "not quite right." But it could be a lazy eye, or, he may not see well in that eye. But it seems as though he definitely has more sight then they ( the docs) originally thought. So, I am praying that it is true- that he does have vision!

Today is his birthday- Six months old! And now weighs 13lbs, so he is growing!  :) He needs one more surgery- to fix his cleft palate so he can eat normally, but they want to wait til he's a year old to do that. So, he will still be tube fed for a bit. He still has the traich tube in his throat and the vent, and he will come home on the vent. And right now he's ready to come home except for the fact they need a home health nurse, and we live in a small town and the  are trying to get round the clock nurse care for them. Ugh. I wish he could be home already!!!

In other news, I am still plugging away at organizing the new house. My office-craft studio is still a mess. I hate that, but not much I can do. I have been sick for the last 3 1/2 weeks, and thought I dodged pneumonia, but I'm not so sure right now. Gotta go to see the doc at 3:30. I'm still short of breath- and don't know if it is pneumonia now, or if I am in congestive heart failure again. I guess I will find out! Will post again after the doc if I can. I could really use some prayers right now!!!